TY - JOUR
T1 - Solidarity during the COVID-19 pandemic
T2 - Evidence from a nine-country interview study in Europe
AU - Kieslich, Katharina
AU - Fiske, Amelia
AU - Gaille, Marie
AU - Galasso, Ilaria
AU - Geiger, Susi
AU - Hangel, Nora
AU - Horn, Ruth
AU - Lanzing, Marjolein
AU - Libert, Sébastien
AU - Lievevrouw, Elisa
AU - Lucivero, Federica
AU - Marelli, Luca
AU - Prainsack, Barbara
AU - Schönweitz, Franziska
AU - Sharon, Tamar
AU - Spahl, Wanda
AU - Van Hoyweghen, Ine
AU - Zimmermann, Bettina M.
N1 - Publisher Copyright:
© Author(s) (or their employer(s)) 2023. No commercial re-use. See rights and permissions. Published by BMJ.
PY - 2023/12/19
Y1 - 2023/12/19
N2 - Calls for solidarity have been an ubiquitous feature in the response to the COVID-19 pandemic. However, we know little about how people have thought of and practised solidarity in their everyday lives since the beginning of the pandemic. What role does solidarity play in people's lives, how does it relate to COVID-19 public health measures and how has it changed in different phases of the pandemic? Situated within the medical humanities at the intersection of philosophy, bioethics, social sciences and policy studies, this article explores how the practice-based understanding of solidarity formulated by Prainsack and Buyx helps shed light on these questions. Drawing on 643 qualitative interviews carried out in two phases (April-May 2020 and October 2020) in nine European countries (Austria, Belgium, France, Germany, Ireland, Italy, The Netherlands, German-speaking Switzerland and the UK), the data show that interpersonal acts of solidarity are important, but that they are not sustainable without consistent support at the institutional level. As the pandemic progressed, respondents expressed a longing for more institutionalised forms of solidarity. We argue that the medical humanities have much to gain from directing their attention to individual health issues, and to collective experiences of health or illness. The analysis of experiences through a collective lens such as solidarity offers unique insights to understandings of the individual and the collective. We propose three essential advances for research in the medical humanities that can help uncover collective experiences of disease and health crises: (1) an empirical and practice-oriented approach alongside more normative approaches; (2) the confidence to make recommendations for practice and policymaking and (3) the pursuit of cross-national and multidisciplinary research collaborations.
AB - Calls for solidarity have been an ubiquitous feature in the response to the COVID-19 pandemic. However, we know little about how people have thought of and practised solidarity in their everyday lives since the beginning of the pandemic. What role does solidarity play in people's lives, how does it relate to COVID-19 public health measures and how has it changed in different phases of the pandemic? Situated within the medical humanities at the intersection of philosophy, bioethics, social sciences and policy studies, this article explores how the practice-based understanding of solidarity formulated by Prainsack and Buyx helps shed light on these questions. Drawing on 643 qualitative interviews carried out in two phases (April-May 2020 and October 2020) in nine European countries (Austria, Belgium, France, Germany, Ireland, Italy, The Netherlands, German-speaking Switzerland and the UK), the data show that interpersonal acts of solidarity are important, but that they are not sustainable without consistent support at the institutional level. As the pandemic progressed, respondents expressed a longing for more institutionalised forms of solidarity. We argue that the medical humanities have much to gain from directing their attention to individual health issues, and to collective experiences of health or illness. The analysis of experiences through a collective lens such as solidarity offers unique insights to understandings of the individual and the collective. We propose three essential advances for research in the medical humanities that can help uncover collective experiences of disease and health crises: (1) an empirical and practice-oriented approach alongside more normative approaches; (2) the confidence to make recommendations for practice and policymaking and (3) the pursuit of cross-national and multidisciplinary research collaborations.
KW - COVID-19
KW - health policy
KW - medical ethics/bioethics
KW - medical humanities
KW - public health
KW - Humanities
KW - Pandemics
KW - Europe
KW - Humans
KW - Qualitative Research
UR - http://www.scopus.com/inward/record.url?scp=85164435847&partnerID=8YFLogxK
U2 - 10.1136/medhum-2022-012536
DO - 10.1136/medhum-2022-012536
M3 - Journal article
C2 - 37277183
AN - SCOPUS:85164435847
SN - 1468-215X
VL - 49
SP - 511
EP - 520
JO - Medical Humanities
JF - Medical Humanities
IS - 4
M1 - medhum-2022-012536
ER -