Abstract
Background: Provided that the antiretroviral therapy is taken correctly, HIV / AIDS has become a chronic disease allowing for a nearly normal daily life, which is still, however, characterized by specific challenges. Aim: The aim of this study was to explore how HIV / AIDS patients experience and manage their everyday life, against the backdrop of chronification. Method: A qualitative grounded theory approach according to Corbin and Strauss; problem-centered interviews with 18 participants suffering from HIV / AIDS; analysis of data was performed by applying coding strategies and supported by MAXQDA. Results: The present study shows that "trust"is of crucial significance to HIV / AIDS patients in their private, occupational and healthcare environments, where discrimination, stigma and exclusion still occur. The revelation of the infection status represents a particular challenge. We identified three key patterns of trust: evolved trust, controlled trust and distrust / loss of trust. Depending on these patterns, patients approach their condition in strikingly different ways, with apparent consequences on their quality of life. Conclusion: The here established trust patterns provide a theoretical foundation that may serve as a hub for improving support and care of people suffering from HIV / AIDS. Moreover, reducing the social stigma and discrimination faced by these individuals, primarily in the healthcare system, is paramount for the future handling of the disease.
Translated title of the contribution | A matter of trust - A grounded theory study on the everyday experience of people living with HIV/AIDS |
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Original language | German |
Pages (from-to) | 31-40 |
Number of pages | 10 |
Journal | Pflege |
Volume | 34 |
Issue number | 1 |
DOIs | |
Publication status | Published - Feb 2021 |
Externally published | Yes |
Keywords
- Anti-HIV Agents/therapeutic use
- Grounded Theory
- HIV Infections/drug therapy
- Humans
- Quality of Life/psychology
- Social Stigma
- Trust
ASJC Scopus subject areas
- General Nursing