Eine Frage des Vertrauens - Grounded Theory-Studie zum Alltagserleben HIV-positiver und an AIDS erkrankter Menschen

Translated title of the contribution: A matter of trust - A grounded theory study on the everyday experience of people living with HIV/AIDS

Paulina Wosko*, Wilfried Schnepp, Hanna Mayer, Sabine Pleschberger

*Corresponding author for this work

Research output: Journal article (peer-reviewed)Journal article

2 Citations (Scopus)

Abstract

Background: Provided that the antiretroviral therapy is taken correctly, HIV / AIDS has become a chronic disease allowing for a nearly normal daily life, which is still, however, characterized by specific challenges. Aim: The aim of this study was to explore how HIV / AIDS patients experience and manage their everyday life, against the backdrop of chronification. Method: A qualitative grounded theory approach according to Corbin and Strauss; problem-centered interviews with 18 participants suffering from HIV / AIDS; analysis of data was performed by applying coding strategies and supported by MAXQDA. Results: The present study shows that "trust"is of crucial significance to HIV / AIDS patients in their private, occupational and healthcare environments, where discrimination, stigma and exclusion still occur. The revelation of the infection status represents a particular challenge. We identified three key patterns of trust: evolved trust, controlled trust and distrust / loss of trust. Depending on these patterns, patients approach their condition in strikingly different ways, with apparent consequences on their quality of life. Conclusion: The here established trust patterns provide a theoretical foundation that may serve as a hub for improving support and care of people suffering from HIV / AIDS. Moreover, reducing the social stigma and discrimination faced by these individuals, primarily in the healthcare system, is paramount for the future handling of the disease.

Translated title of the contributionA matter of trust - A grounded theory study on the everyday experience of people living with HIV/AIDS
Original languageGerman
Pages (from-to)31-40
Number of pages10
JournalPflege
Volume34
Issue number1
DOIs
Publication statusPublished - Feb 2021
Externally publishedYes

Keywords

  • Anti-HIV Agents/therapeutic use
  • Grounded Theory
  • HIV Infections/drug therapy
  • Humans
  • Quality of Life/psychology
  • Social Stigma
  • Trust

ASJC Scopus subject areas

  • General Nursing

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