Eine Frage des Vertrauens - Grounded Theory-Studie zum Alltagserleben HIV-positiver und an AIDS erkrankter Menschen

Paulina Wosko*, Wilfried Schnepp, Hanna Mayer, Sabine Pleschberger

*Korrespondierende:r Autor:in für diese Arbeit

Publikation: Beitrag in Fachzeitschrift (peer-reviewed)Artikel in Fachzeitschrift

1 Zitat (Scopus)

Abstract

Background: Provided that the antiretroviral therapy is taken correctly, HIV / AIDS has become a chronic disease allowing for a nearly normal daily life, which is still, however, characterized by specific challenges. Aim: The aim of this study was to explore how HIV / AIDS patients experience and manage their everyday life, against the backdrop of chronification. Method: A qualitative grounded theory approach according to Corbin and Strauss; problem-centered interviews with 18 participants suffering from HIV / AIDS; analysis of data was performed by applying coding strategies and supported by MAXQDA. Results: The present study shows that "trust"is of crucial significance to HIV / AIDS patients in their private, occupational and healthcare environments, where discrimination, stigma and exclusion still occur. The revelation of the infection status represents a particular challenge. We identified three key patterns of trust: evolved trust, controlled trust and distrust / loss of trust. Depending on these patterns, patients approach their condition in strikingly different ways, with apparent consequences on their quality of life. Conclusion: The here established trust patterns provide a theoretical foundation that may serve as a hub for improving support and care of people suffering from HIV / AIDS. Moreover, reducing the social stigma and discrimination faced by these individuals, primarily in the healthcare system, is paramount for the future handling of the disease.

Titel in ÜbersetzungA matter of trust - A grounded theory study on the everyday experience of people living with HIV/AIDS
OriginalspracheDeutsch
Seiten (von - bis)31-40
Seitenumfang10
FachzeitschriftPflege
Jahrgang34
Ausgabenummer1
DOIs
PublikationsstatusVeröffentlicht - Feb. 2021
Extern publiziertJa

Schlagwörter

  • AIDS
  • grounded theory
  • HIV
  • social stigma
  • trust

ASJC Scopus Sachgebiete

  • Allgemeine Pflege

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